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Quiénes somos
Nuestra Misión
Conozca al Equipo
Nuestros Asesores
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Trasplante
Información Básica
Qué es un Trasplante de Células Madre?
Enfermedades Tratadas con Trasplantes
Quién Puede Someterse a un Trasplante?
Prepararse para un Trasplante
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Cómo se Obtienen las Células Madre
Encontrar a un Donante
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Proteja Su Fertilidad
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Preparar a Familiares y Amigos
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El Papel del Cuidador
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Regresar a Casa
Prevenir Infecciones
Nutrición y Dificultades para Alimentarse
La EIcH después del Trasplante
Período de Recuperación a Largo Plazo
Pautas de Salud a Largo Plazo
Plan de Cuidados para Sobrevivientes
Efectos Secundarios Tardíos y a Largo Plazo
Efectos Tardíos en Niños
EICH
Qué es la Enfermedad Injerto-contra Huésped
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Infecciones y EIcH
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Otros medicamentos para tratar la EIcH
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EICH, Directorio de Proveedores
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Qué es la Terapia CAR T
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Share Your Story. Support People living with GVHD.
BMT Infonet's GVHD Wall of Hope inspires hope and raises awareness about graft-versus-host disease (GVHD).
Tell us how GVHD is affecting your life, or that of a loved one.
Tell us what inspires you to continue the fight against GVHD – your message of hope.
Complete the form below to have your message added to the GVHD Wall of Hope.
Contact 1
Select the group that best describes you.
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Your Birth Month and Year
Your Birth Month and Year: Mes
Mes
Ene
Feb
Mar
Abr
May
Jun
Jul
Ago
Sep
Oct
Nov
Dic
Your Birth Month and Year: Año
Año
2027
2026
2025
2024
2023
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995
1994
1993
1992
1991
1990
1989
1988
1987
1986
1985
1984
1983
1982
1981
1980
1979
1978
1977
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1971
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1968
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1941
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1939
1938
1937
1936
1935
1934
1933
1932
1931
1930
1929
1928
1927
1926
Patient Info & Relationship
Relationship to Patient
Select
Patient/Survivor
Spouse of Patient/Survivor
Partner of Patient/Survivor
Child of Patient/Survivor
Parent of Patient/Survivor
Sibling of Patient/Survivor
Grandparent of Patient/Survivor
Other Relative of Patient/Survivor
Unrelated Caregiver of Survivor
Donor
Friend
Other
Unknown
Relationship Other
Patient First Name
Patient Last Name
Diagnosis Info
Disease
Type in diagnosis to see list or select Other and complete the disease description.
Select
Acquired Pure Red Cell Aplasia
Acute Lymphoblastic Leukemia (ALL)
Acute Mast Cell
Acute Myeloid/Myelogenous Leukemia (AML)
Adrenoleukodystrophy (ALD)
Amyloidosis
Ataxis Telangiectasis
Autoimmune Hemolytic Anemia (AIHA)
Autoimmune Lymphoproliferative Syndrome (ALP)
Autoimmune Thrombocytopenic Purpura
B-cell Prolymphocytic Leukemia (B-PLL)
Bare Lymphocyte Syndrome
Battens Disease
Behcet's Disease
Biphenotypic acute leukemia (BAL)
Blastic plasmacytoid dendritic cell neoplasm (BPDCN)
Bone-Marrow Failure
Brain Tumor
Breast Cancer
Burkitt's Lymphoma
Castlemans Disease
Cd 40 Ligand Deficiency
Central Nervous System Malignancies
Chediak-Higashi Syndrome
Chronic Eosinophilic Leukemia (CEL)
Chronic Granulomatous Disease
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Chronic Lymphocytic Leukemia (CLL)
Chronic Myeloid (Myelogenous) Leukemia (CML)
Chronic Myelomonocytic Leukemia (CMML)
Chronic Neutrophilic Leukemia (CNL)
Colon Cancer
Congenital Amegakaryocytic Thrombocytopenia (CAMT)
Cutaneous T-Cell Lymphoma (CTCL)
Devic's disease- Neuromyelitis optica (NMO)
Diamond-Blackfan Anemia
DiGeorge Anomaly
Dyskeratosis Congenita
Essential Thrombocythemia (ET)
Evan's Syndrome
Ewing's Sarcoma
Experience with All Diseases treated by transplant
Fanconi anemia (FA)
Felty's Syndrome
GATA2 Deficiency
Gauchers Disease
Germ Cell Tumor
Hairy Cell Leukemia
Histiocytosis, Hemophagocytic (HLH)
Histiocytosis, Langerhans Cell (LCH)
Hodgkin's Disease (HD)
Hunter's Disease
Hurler's Syndrome
Hyper IgE Syndrome
I-Cell disease
Idiopathic Thrombocytopenic purpura (ITP)
Immunodysregulation Polyendocrinopathy enteropathy X-linked Syndrome (IPEX)
Juvenile Chronic Granulocytic (JCGL)
Juvenile Myelomonocytic Leukemia (JMML)
Kostmann's Syndrome
Krabbe Disease
Large Granular Lymphocytic Leukemia
Lesch-Nyhan disease
Leukemia
Leukocyte Adhesion Deficiency
Light Chain Deposition Disease
Lung Cancer
Lupus, Systemic
Lymphomatoid Granulomatosis
Mantle Cell Lymphoma (MCL)
Maroteaux-Lamy Syndrome
Melanoma
Metachromatic Leukodystrophy
Morquio
Mucopolysaccharidosis type 1 (MPS 1)
Multiple Myeloma
Multiple Sclerosis
Myelodysplastic Syndrome (MDS)
Myelofibrosis (MF)
Myeloid sarcoma
Myeloproliferative Disorder/Neoplasms (MPD)(MPN)
Natowicz Syndrome
Myelodysplastic syndrome/myeloproliferative neoplasm (MDS/MPN) overlap syndrome
Neuroblastoma
Niemann-Pick Disease
Non-Hodgkin Lymphoma (NHL)
Omenn Syndrome
Osteogeneic Sarcoma
Osteopetrosis
Ovarian Cancer
Parkinson's Disease
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Poems Syndrome
Polycythemia Vera (PV)
Porphyria
Primitive Neuroectodermal Tumor (PNET)
Pure red cell aplasia
Renal Cell Cancer
Retinoblastoma
Rheumatoid Arthritis (RA)
Sanfilippo Syndrome
Schwachmann-Diamond Syndrome
Scleroderma
Severe aplastic anemia
Severe Combined Immunodeficiency Disease (SCID)
Sezery Syndrome
Sickle Cell Disease
Soft Tissue Sarcoma
T-Cell Prolymphocytic leukemia (T-PLL)
Testicular Cancer
Thalassemia
Thymoma
TLR8-associated immunodeficiency
VEXAS Syndrome
Waldenstrom's Macroglobulinemia
Wilm's Tumor
Wiskott-Aldrich Syndrome
Wolman Disease
X-Linked Agammaglobulinemia
X-Linked Hyper IgM Syndrome
X-Linked Lymphoproliferative Syndrome (XPL)
Other Disease
Disease Description -
If your disease was not listed above enter it here.
Transplant Info
Date of Transplant
Date of Transplant: Mes
Mes
Ene
Feb
Mar
Abr
May
Jun
Jul
Ago
Sep
Oct
Nov
Dic
Date of Transplant: Año
Año
2027
2026
2025
2024
2023
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995
1994
1993
1992
1991
1990
1989
1988
1987
1986
1985
1984
1983
1982
1981
1980
1979
1978
1977
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1974
1973
1972
1971
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1951
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1945
1944
1943
1942
1941
1940
1939
1938
1937
1936
Patient Age at time of transplant
Your Age at time of the transplant
Health Issues After Transplant
Date - Health Issues Reviewed/Updated
Select all Complication after transplant
GVHD - Acute
GVHD - Chronic
Alopecia Hair Loss
Bone Pain/degeneration
Breathing Difficulties
Bronchitis - Chronic
Cataracts
Cognitive Problems
Contractures
Dental Problems
Depression
Dry Eyes
Dry Mouth
Dry Skin
Fatigue - Chronic
Gastrointestinal
Growth Problems
Hearing Loss
Heart Problems
Hepatitis C
Infection - Aspergillus
Infection - CMV
Infection - Other
Infection - Pneumonia
Infection - Shingles
Infertility
Joint/Muscle Pain
Kidney Problems
Liver Abnormalities
Liver/Kidney Damage
Loss of Appetite
Low Platelet Count
Neuropathy
Pain - Chronic
Premature Menopause
Sexual Difficulties
Skin Discoloration
Skin Rash/Lesions
Transfusion Dependancy
Vision Impairment
VOD Veno Occlusive Disease
Weight Gain
Weight Loss
Other
The Severity of GVHD
Mild
Moderate
Severe
Select all organs GVHD is or has affected.
Skin
Nails
Eye
Mouth
Throat
GI Tract/Stomach
Muscles
Joints/Fascia
Genitalia
Liver
Lung
Nervous System
Other areas of GVHD
Transplant Center Staff Information
Transplant Center Position
Select
BMT Program Director
Transplant Medical Director
Transplant Physician
Transplant Physician Assistant
Transplant Nurse Practitioner
Transplant Coordinator
Transplant Nurse
BMT Psychiatrist
BMT Psychologist
BMT Social Worker
BMT Child life specialist
BMT Survivorship Program Director
BMT Survivorship Program Coordinator
BMT Other Patient Support Services
BMT Pharmacist
Program Administrator
Transplant Dietitian
Data Provider - BMT
Other
Position Other
CAR T Staff Information
CAR T Center Position
Select
CAR T Program Director
CAR T Medical Director
CAR T Physician
CAR T Physician Assistant
CAR T Nurse Practitioner
CAR T Nurse
CAR T Nurse Navigator
CAR T Coordinator
CAR T Psychologist
CAR T Social Worker
CAR T Survivorship Program Director
CAR T Survivorship Program Coordinator
CAR T Other Patient Support Services
CAR T Pharmacist
CAR T Dietitian
CAR T Program Administrator
Data Provider - CAR T
CAR T Other
CAR T Position Other
Your Message of Hope:
Tell us how GVHD is affecting your life, or that of a loved one.
What is your message of hope? What inspires you to continue the fight against GVHD?
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Back to Top
Navegación principal
Quiénes somos
Nuestra Misión
Conozca al Equipo
Nuestros Asesores
Patrocinadores y Socios
Trasplante
Información Básica
Qué es un Trasplante de Células Madre?
Enfermedades Tratadas con Trasplantes
Quién Puede Someterse a un Trasplante?
Prepararse para un Trasplante
Elegir un Centro de Trasplante
Cómo se Obtienen las Células Madre
Encontrar a un Donante
Ser Donante Relacionado
Ser Donante No Relacionado
Seguros y Cuestiones Financieras
Proteja Su Fertilidad
Desafíos Emocionales
Preparar a Familiares y Amigos
Prepararse para el Trasplante de un Hijo
El Papel del Cuidador
Trasplante y Recuperación Temprana
Quimioterapia, Radiación y Efectos Secundarios
Día del Trasplante e Injerto
Regresar a Casa
Prevenir Infecciones
Nutrición y Dificultades para Alimentarse
La EIcH después del Trasplante
Período de Recuperación a Largo Plazo
Pautas de Salud a Largo Plazo
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