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What is a Blood Stem Cell Transplant?
Diseases Treated by Transplants
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Finding a Donor
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GVHD after Transplant
Long-Term Recovery Period
Long-Term Health Guidelines after Transplant
Survivorship Care Plan
Late and Long-Term Side Effects
Late Effects in Children
GVHD
What is Graft-versus-Host-Disease
Acute GVHD Symptoms and Treatment
Chronic GVHD Symptoms and Treatment
Infection and Graft-versus-Host Disease
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Share Your Story. Support People living with GVHD.
BMT Infonet's GVHD Wall of Hope inspires hope and raises awareness about graft-versus-host disease (GVHD).
Tell us how GVHD is affecting your life, or that of a loved one.
Tell us what inspires you to continue the fight against GVHD – your message of hope.
Complete the form below to have your message added to the GVHD Wall of Hope.
Contact 1
Select the group that best describes you.
Patient / Family / Friend
Cellular Therapy Staff
Medical Personnel/Not Transplant Staff
Advocacy - Staff
Pharma/Med Supply Staff
Other Organizations - Staff
First Name
Last Name
Degree
Organization Name
Email
Phone Number
Phone Type
Cell
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Street Address
Street Address Line 2
City
State/Province
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Country
United States
Afghanistan
Åland Islands
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Austria
Azerbaijan
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Bahrain
Bangladesh
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Belize
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Bosnia and Herzegovina
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Bouvet Island
Brazil
British Indian Ocean Territory
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Bulgaria
Burkina Faso
Burundi
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Chad
Chile
China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Congo, Republic Of The
Congo, The Democratic Republic of the
Cook Islands
Costa Rica
Côte d’Ivoire
Croatia
Cuba
Curaçao
Cyprus
Czech Republic
Denmark
Djibouti
Dominica
Dominican Republic
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Egypt
El Salvador
Equatorial Guinea
Eritrea
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Eswatini
Ethiopia
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Faroe Islands
Fiji
Finland
France
French Guiana
French Polynesia
French Southern Territories
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Gambia
Georgia
Germany
Ghana
Gibraltar
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
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Guinea
Guinea-Bissau
Guyana
Haiti
Heard Island and McDonald Islands
Holy See (Vatican City State)
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran, Islamic Republic of
Iraq
Ireland
Isle of Man
Israel
Italy
Jamaica
Japan
Jersey
Jordan
Kazakhstan
Kenya
Kiribati
Korea, Democratic People's Republic of
Korea, Republic of
Kosovo
Kuwait
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Lao People's Democratic Republic
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Martinique
Mauritania
Mauritius
Mayotte
Mexico
Micronesia, Federated States of
Moldova
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar
Namibia
Nauru
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Netherlands
New Caledonia
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
North Macedonia
Northern Mariana Islands
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Oman
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Palau
Palestine, State of
Panama
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Paraguay
Peru
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Pitcairn
Poland
Portugal
Puerto Rico
Qatar
Reunion
Romania
Russian Federation
Rwanda
Saint Barthélemy
Saint Helena
Saint Kitts and Nevis
Saint Lucia
Saint Martin (French part)
Saint Pierre and Miquelon
Saint Vincent and the Grenadines
Samoa
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Serbia and Montenegro
Seychelles
Sierra Leone
Singapore
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Slovakia
Slovenia
Solomon Islands
Somalia
South Africa
South Georgia and the South Sandwich Islands
South Sudan
Spain
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Sudan
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Sweden
Switzerland
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Thailand
Timor-Leste
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Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
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Ukraine
United Arab Emirates
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United States Minor Outlying Islands
Uruguay
Uzbekistan
Vanuatu
Venezuela
Viet Nam
Virgin Islands, British
Virgin Islands, U.S.
Wallis and Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Your Birth Month and Year
Your Birth Month and Year: Month
Month
Jan
Feb
Mar
Apr
May
Jun
Jul
Aug
Sep
Oct
Nov
Dec
Your Birth Month and Year: Year
Year
2026
2025
2024
2023
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995
1994
1993
1992
1991
1990
1989
1988
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1986
1985
1984
1983
1982
1981
1980
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1977
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1969
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1943
1942
1941
1940
1939
1938
1937
1936
1935
1934
1933
1932
1931
1930
1929
1928
1927
1926
1925
Patient Info & Relationship
Relationship to Patient
Select
Patient/Survivor
Spouse of Patient/Survivor
Partner of Patient/Survivor
Child of Patient/Survivor
Parent of Patient/Survivor
Sibling of Patient/Survivor
Grandparent of Patient/Survivor
Other Relative of Patient/Survivor
Unrelated Caregiver of Survivor
Donor
Friend
Other
Unknown
Relationship Other
Patient First Name
Patient Last Name
Diagnosis Info
Disease
Type in diagnosis to see list or select Other and complete the disease description.
Select
Acquired Pure Red Cell Aplasia
Acute Lymphoblastic Leukemia (ALL)
Acute Mast Cell
Acute Myeloid/Myelogenous Leukemia (AML)
Adrenoleukodystrophy (ALD)
Amyloidosis
Ataxis Telangiectasis
Autoimmune Hemolytic Anemia (AIHA)
Autoimmune Lymphoproliferative Syndrome (ALP)
Autoimmune Thrombocytopenic Purpura
B-cell Prolymphocytic Leukemia (B-PLL)
Bare Lymphocyte Syndrome
Battens Disease
Behcet's Disease
Biphenotypic acute leukemia (BAL)
Blastic plasmacytoid dendritic cell neoplasm (BPDCN)
Bone-Marrow Failure
Brain Tumor
Breast Cancer
Burkitt's Lymphoma
Castlemans Disease
Cd 40 Ligand Deficiency
Central Nervous System Malignancies
Chediak-Higashi Syndrome
Chronic Eosinophilic Leukemia (CEL)
Chronic Granulomatous Disease
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Chronic Lymphocytic Leukemia (CLL)
Chronic Myeloid (Myelogenous) Leukemia (CML)
Chronic Myelomonocytic Leukemia (CMML)
Chronic Neutrophilic Leukemia (CNL)
Colon Cancer
Congenital Amegakaryocytic Thrombocytopenia (CAMT)
Cutaneous T-Cell Lymphoma (CTCL)
Devic's disease- Neuromyelitis optica (NMO)
Diamond-Blackfan Anemia
DiGeorge Anomaly
Dyskeratosis Congenita
Essential Thrombocythemia (ET)
Evan's Syndrome
Ewing's Sarcoma
Experience with All Diseases treated by transplant
Fanconi anemia (FA)
Felty's Syndrome
GATA2 Deficiency
Gauchers Disease
Germ Cell Tumor
Hairy Cell Leukemia
Histiocytosis, Hemophagocytic (HLH)
Histiocytosis, Langerhans Cell (LCH)
Hodgkin's Disease (HD)
Hunter's Disease
Hurler's Syndrome
Hyper IgE Syndrome
I-Cell disease
Idiopathic Thrombocytopenic purpura (ITP)
Immunodysregulation Polyendocrinopathy enteropathy X-linked Syndrome (IPEX)
Juvenile Chronic Granulocytic (JCGL)
Juvenile Myelomonocytic Leukemia (JMML)
Kostmann's Syndrome
Krabbe Disease
Large Granular Lymphocytic Leukemia
Lesch-Nyhan disease
Leukemia
Leukocyte Adhesion Deficiency
Light Chain Deposition Disease
Lung Cancer
Lupus, Systemic
Lymphomatoid Granulomatosis
Mantle Cell Lymphoma (MCL)
Maroteaux-Lamy Syndrome
Melanoma
Metachromatic Leukodystrophy
Morquio
Mucopolysaccharidosis type 1 (MPS 1)
Multiple Myeloma
Multiple Sclerosis
Myelodysplastic Syndrome (MDS)
Myelofibrosis (MF)
Myeloid sarcoma
Myeloproliferative Disorder/Neoplasms (MPD)(MPN)
Natowicz Syndrome
Myelodysplastic syndrome/myeloproliferative neoplasm (MDS/MPN) overlap syndrome
Neuroblastoma
Niemann-Pick Disease
Non-Hodgkin Lymphoma (NHL)
Omenn Syndrome
Osteogeneic Sarcoma
Osteopetrosis
Ovarian Cancer
Parkinson's Disease
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Poems Syndrome
Polycythemia Vera (PV)
Porphyria
Primitive Neuroectodermal Tumor (PNET)
Pure red cell aplasia
Renal Cell Cancer
Retinoblastoma
Rheumatoid Arthritis (RA)
Sanfilippo Syndrome
Schwachmann-Diamond Syndrome
Scleroderma
Severe aplastic anemia
Severe Combined Immunodeficiency Disease (SCID)
Sezery Syndrome
Sickle Cell Disease
Soft Tissue Sarcoma
T-Cell Prolymphocytic leukemia (T-PLL)
Testicular Cancer
Thalassemia
Thymoma
TLR8-associated immunodeficiency
VEXAS Syndrome
Waldenstrom's Macroglobulinemia
Wilm's Tumor
Wiskott-Aldrich Syndrome
Wolman Disease
X-Linked Agammaglobulinemia
X-Linked Hyper IgM Syndrome
X-Linked Lymphoproliferative Syndrome (XPL)
Other Disease
Disease Description -
If your disease was not listed above enter it here.
Transplant Info
Date of Transplant
Date of Transplant: Month
Month
Jan
Feb
Mar
Apr
May
Jun
Jul
Aug
Sep
Oct
Nov
Dec
Date of Transplant: Year
Year
2026
2025
2024
2023
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995
1994
1993
1992
1991
1990
1989
1988
1987
1986
1985
1984
1983
1982
1981
1980
1979
1978
1977
1976
1975
1974
1973
1972
1971
1970
1969
1968
1967
1966
1965
1964
1963
1962
1961
1960
1959
1958
1957
1956
1955
1954
1953
1952
1951
1950
1949
1948
1947
1946
1945
1944
1943
1942
1941
1940
1939
1938
1937
1936
1935
Patient Age at time of transplant
Your Age at time of the transplant
Health Issues After Transplant
Date - Health Issues Reviewed/Updated
Select all Complication after transplant
GVHD - Acute
GVHD - Chronic
Alopecia Hair Loss
Bone Pain/degeneration
Breathing Difficulties
Bronchitis - Chronic
Cataracts
Chronic Pain
Cognitive Problems
Contractures
Dental Problems
Depression
Dry Eyes
Dry Mouth
Dry Skin
Fatigue - Chronic
Gastrointestinal
Growth Problems
Hearing Loss
Heart Problems
Hepatitis C
Infection - Aspergillus
Infection - CMV
Infection - Other
Infection - Pneumonia
Infection - Shingles
Infertility
Joint/Muscle Pain
Kidney Problems
Liver Abnormalities
Liver/Kidney Damage
Loss of Appetite
Low Platelet Count
Neuropathy
Premature Menopause
Sexual Difficulties
Skin Discoloration
Skin Rash/Lesions
Transfusion Dependancy
Vision Impairment
VOD Veno Occlusive Diseas
Weight Gain
Weight Loss
Other
The Severity of GVHD
Mild
Moderate
Severe
Select all organs GVHD is or has affected.
Skin
Nails
Eye
Mouth
Throat
GI Tract/Stomach
Muscles
Joints/Fascia
Genitalia
Liver
Lung
Nervous System
Other areas of GVHD
Transplant Center Staff Information
Transplant Center Position
Select
BMT Program Director
Transplant Medical Director
Transplant Physician
Transplant Physician Assistant
Transplant Nurse Practitioner
Transplant Coordinator
Transplant Nurse
BMT Psychiatrist
BMT Psychologist
BMT Social Worker
BMT Child life specialist
BMT Survivorship Program Director
BMT Survivorship Program Coordinator
BMT Other Patient Support Services
BMT Pharmacist
Program Administrator
Transplant Dietitian
Data Provider - BMT
Other
Position Other
CAR T Staff Information
CAR T Center Position
Select
CAR T Program Director
CAR T Medical Director
CAR T Physician
CAR T Physician Assistant
CAR T Nurse Practitioner
CAR T Nurse
CAR T Nurse Navigator
CAR T Coordinator
CAR T Psychologist
CAR T Social Worker
CAR T Survivorship Program Director
CAR T Survivorship Program Coordinator
CAR T Other Patient Support Services
CAR T Pharmacist
CAR T Dietitian
CAR T Program Administrator
Data Provider - CAR T
CAR T Other
CAR T Position Other
Your Message of Hope:
Tell us how GVHD is affecting your life, or that of a loved one.
What is your message of hope? What inspires you to continue the fight against GVHD?
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Main navigation
About Us
Our Mission
Meet Our Team
Our Medical Advisors
Sponsors and Partners
Transplant
Transplant Basics
What is a Blood Stem Cell Transplant?
Diseases Treated by Transplants
Who Can Undergo a Transplant
Preparing for a Transplant
Choosing a Transplant Center
How Stem Cells are Collected
Finding a Donor
Being a Related Donor
Being an Unrelated Donor
Insurance and Financial Issues
Preserve Your Fertility
Emotional Challenges
Preparing Family and Friends
Preparing for Your Child’s Transplant
The Role of the Caregiver
Transplant and Early Recovery
Chemotherapy, Radiation and Side Effects
Day of Transplant and Engraftment
Returning Home
Preventing Infection
Nutrition and Eating Difficulties
GVHD after Transplant
Long-Term Recovery Period
Long-Term Health Guidelines after Transplant
Survivorship Care Plan
Late and Long-Term Side Effects
Late Effects in Children
GVHD
What is Graft-versus-Host-Disease
Acute GVHD Symptoms and Treatment
Chronic GVHD Symptoms and Treatment
Infection and Graft-versus-Host Disease
Steroids
Other Drugs to Treat GVHD
Coping with the Stress of GVHD
GVHD Caregivers
GVHD Provider Directory
CAR T-cell Therapy
What is CAR T-cell Therapy?
Find a CAR T-cell Medical Center
Preparing for CAR T-cell therapy
Insurance and Financial Planning
Potential Side Effects of CAR T-cell Therapy
Early Recovery
Coping with Stress of CAR T-cell Therapy
The Role of the Caregiver
Find a Provider
Transplant Center Search
CAR T-cell Therapy Center Search
GVHD Provider Search
Mental Health Provider Search
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