Language Undefined Welcome to BMT InfoNet’s Mailing List. Please complete the form below to receive timely, important information about bone marrow, stem cell and cord blood transplantation Type of Individual * Please select the type of individual that best describes you. Transplant Patient/Survivor/ Family / Friend Transplant Center Staff Medical Personnel/Not Transplant Staff Advocacy Organization - Staff Employee of Pharma/Med Supply Insurance Personnel Other Organizations - Staff Other Organizations - Staff Organizations - Area of Specialty - None -Library-StaffGovernment-StaffFoundation-Staff First Name * Last Name * Email * Your Relationship to Patient - None -Patient/SurvivorSpouse of Patient/SurvivorPartner of Patient/SurvivorChild of Patient/SurvivorParent of Patient/SurvivorSibling of Patient/SurvivorGrandparent of Patient/SurvivorOther Relative of Patient/SurvivorUnrelated Caregiver of SurvivorDonorFriendOtherUnknown Transplant Info Please select the disease from the drop down - None -Acquired Pure Red Cell AplasiaAcute Lymphoblastic Leukemia (ALL)Acute Mast CellAcute Myeloid/Myelogenous Leukemia (AML)Adrenoleukodystrophy (ALD)AmyloidosisAtaxis TelangiectasisAutoimmune Hemolytic Anemia (AIHA)Autoimmune Lymphoproliferative Syndrome (ALP)Autoimmune Thrombocytopenic PurpuraB-cell Prolymphocytic Leukemia (B-PLL)Bare Lymphocyte SyndromeBattens DiseaseBehcet's DiseaseBiphenotypic acute leukemia (BAL)Blastic plasmacytoid dendritic cell neoplasm (BPDCN)Bone-Marrow FailureBrain TumorBreast CancerBurkitt's LymphomaCastlemans DiseaseCd 40 Ligand DeficiencyCentral Nervous System MalignanciesChediak-Higashi SyndromeChronic Eosinophilic Leukemia (CEL)Chronic Granulomatous DiseaseChronic Inflammatory Demyelinating Polyneuropathy (CIDP)Chronic Lymphocytic Leukemia (CLL)Chronic Myeloid (Myelogenous) Leukemia (CML)Chronic Myelomonocytic Leukemia (CMML)Chronic Neutrophilic Leukemia (CNL)Colon CancerCongenital Amegakaryocytic Thrombocytopenia (CAMT)Cutaneous T-Cell Lymphoma (CTCL)Devic's disease- Neuromyelitis optica (NMO)Diamond-Blackfan AnemiaDiGeorge AnomalyDyskeratosis CongenitaEssential Thrombocythemia (ET)Evan's SyndromeEwing's SarcomaExperience with All Diseases treated by transplantFanconi anemia (FA)Felty's SyndromeGATA2 DeficiencyGauchers DiseaseGerm Cell TumorHairy Cell LeukemiaHistiocytosis, Hemophagocytic (HLH)Histiocytosis, Langerhans Cell (LCH)Hodgkin's Disease (HD)Hunter's DiseaseHurler's SyndromeHyper IgE SyndromeI-Cell diseaseIdiopathic Thrombocytopenic purpura (ITP)Immunodysregulation Polyendocrinopathy enteropathy X-linked Syndrome (IPEX)Juvenile Chronic Granulocytic (JCGL)Juvenile Myelomonocytic Leukemia (JMML)Kostmann's SyndromeKrabbe DiseaseLarge Granular Lymphocytic LeukemiaLesch-Nyhan diseaseLeukemiaLeukocyte Adhesion DeficiencyLight Chain Deposition DiseaseLung CancerLupus, SystemicLymphomatoid GranulomatosisMantle Cell Lymphoma (MCL)Maroteaux-Lamy SyndromeMelanomaMetachromatic LeukodystrophyMorquioMucopolysaccharidosis type 1 (MPS 1)Multiple MyelomaMultiple SclerosisMyelodysplastic Syndrome (MDS)Myelofibrosis (MF)Myeloid sarcomaMyeloproliferative Disorder/Neoplasms (MPD)(MPN)Natowicz SyndromeNeuroblastomaNiemann-Pick DiseaseNon-Hodgkin Lymphoma (NHL)Omenn SyndromeOsteogeneic SarcomaOsteopetrosisOvarian CancerParkinson's DiseaseParoxysmal Nocturnal Hemoglobinuria (PNH)Poems SyndromePolycythemia Vera (PV)PorphyriaPrimitive Neuroectodermal Tumor (PNET)Pure red cell aplasiaRenal Cell CancerRetinoblastomaRheumatoid Arthritis (RA)Sanfilippo SyndromeSchwachmann-Diamond SyndromeSclerodermaSevere aplastic anemiaSevere Combined Immunodeficiency Disease (SCID)Sezery SyndromeSickle Cell DiseaseSoft Tissue SarcomaT-Cell Prolymphocytic leukemia (T-PLL)Testicular CancerThalassemiaThymomaWaldenstrom's MacroglobulinemiaWilm's TumorWiskott-Aldrich SyndromeWolman DiseaseX-Linked AgammaglobulinemiaX-Linked Hyper IgM SyndromeX-Linked Lymphoproliferative Syndrome (XPL)Other DiseaseTLR8-associated immunodeficiencyVEXAS SyndromeMyelodysplastic syndrome/myeloproliferative neoplasm (MDS/MPN) overlap syndrome Date of most recent transplant or expected transplant date Month MonthJanFebMarAprMayJunJulAugSepOctNovDec Day Day12345678910111213141516171819202122232425262728293031 Year Year1924192519261927192819291930193119321933193419351936193719381939194019411942194319441945194619471948194919501951195219531954195519561957195819591960196119621963196419651966196719681969197019711972197319741975197619771978197919801981198219831984198519861987198819891990199119921993199419951996199719981999200020012002200320042005200620072008200920102011201220132014201520162017201820192020202120222023202420252026202720282029203020312032203320342035203620372038203920402041204220432044204520462047204820492050205120522053205420552056205720582059206020612062206320642065206620672068206920702071207220732074 Transplant Type (MRT) - None -Autologous (using your own cells)Tandem AutologousAllogeneic (using donor cells)Syngeneic (using identical twin cells)Allogeneic after an AutologousUnknown Organization and Title If you are part of an organization please tell us the name of the organization and your position Health Status Post Transplant Current Health Status Please share any information on survivor's current health status Did you have Graft-versus-Host Disease (GVHD) - None -YesNo Do you currently have GVHD? - None -YesNo The Severity of GVHD - None -MildModerateSevere GVHD Organs Select all organs GVHD is or has affected SkinNailsEyeMouthThroatGI Tract/StomachMusclesJoints/FasciaGenitaliaLiverLungNervous SystemOther areas of GVHD Notes about yourself Leave this field blank Submit