- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Resource Directory
BMT InfoNet has created a directory of organizations that provide helpful information and support for transplant patients and their loved ones. Click on the topic below that interests you to see organizations that can help you. Click on the name of the organization to access their web site.
To order a print version of this directory click here.
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Preparing for Transplant
Blood & Marrow Transplant Information Network (BMTInfoNet)
American Society for Transplantation and Cellular Therapy
- Information for physicians about:
- Appropriate patients to refer for transplant
- Medical preventive and screening practices for survivors after transplant
- Information for families about cord blood banking
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Center for International Blood and Marrow Transplant Research
- Registry of data about blood stem cell transplant practices and outcomes collected from transplant centers world wide.
- Slides about current transplant trends worldwide
- Summaries of select studies conducted by CIBMTR research teams
U.S. Health Resources & Services Administration (HRSA)
- Historical data on:
- Transplants performed at specific U. S, transplant centers
- Transplants performed in the U.S. for specific diseases
- Survival data after transplant for specific diseases
CAR T Therapy
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Leukemia and Lymphoma Society
- Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder.
- Financial Assistance
- Brochure for children about transplant
- How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.
Lymphoma Research Foundation
- Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma
- Financial assistance for patients undergoing treatment
Clinical Trials
Carebox Healthcare Solutions Inc.
Free personalized search assistance for clinical trials.
Be The Match Jason Carter Clinical Trials Search & Support (CTSS)
- Help you and your family learn about and access clinical trials.
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One-on-one telephone support from a clinical trial nurse to help navigate and search for clinical trials.
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Easy-to-use, web-based search tool to find relevant clinical trials
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Easy-to-understand educational resources for patients and families to learn about cancer treatment options and clinical trials.
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Financial assistance for travel expenses related to clinical trials
National Institutes of Health
Information about clinical trials to treat a variety of diseases at medical facilities world-wide.
National Institutes of Health Center for Cancer Research
Free stem cell transplants for patients who qualify for one of the agency's clinical trials.
Family Caregivers
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Cancer Support Community
Information about caring for cancer patients and links to in-person support groups.
CareZone.com
Online and mobile app to organize medications, appointments, important contacts and other medical information.
CaringBridge
Website where patients can create a personalized webpage to communicate with friends and family, and organize support during treatment.
Lotsa Helping Hands
Organize volunteers by creating a personalized calendar and outlining your specific needs.
Peer Support and Counseling
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Wonders and Worries
- National hotline, staffed by child life specialists, for parents who need help explaining a parent’s illness and treatment to their children.
- Free in-person individual or group sessions, led by child life experts, for children and teens who have a parent with a serious illness in the Austin, San Antonio and Houston, Texas areas.
- Teen mobile app (Sup!) with activities, information, an inspirational wall, moderated discussion forums and direct messaging to a child life specialist
CancerCare, Inc.
- Financial aid for cancer patients
- emotional support
Leukemia Research Foundation
- Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
- Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.
Smart Patients
Online support community for patients with amyloidosis, leukemia, lymphoma, multiple myeloma, POEMS syndrome and stem cell transplant patients.
Financial Assistance
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Accessia Health
- Helps those with chronic illnesses or conditions subsidize cost of health insurance premiums.
- Financial assistance available to patients with specific diseases. Covered diseases change periodically.
Air Charity Network
Free air transportation for patients in financial need who must travel to receive medical treatment.
Alex's Lemonade Stand
Travel funds for children treated at specific hospitals.
American Cancer Society
- Road to Recovery program provides free rides for cancer patients to and from treatment.
- The Hope Lodges offers free lodging for cancer patients undergoing treatment away from home.
- Extended Stay America provides discounted lodging program for cancer patients.
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Bone Marrow & Cancer Foundation
Financial aid for donor costs, medications and equipment, home and child care services, housing and transportation. Provides scholarship grants to survivors for educational opportunities.
CancerCare, Inc.
- Financial aid for cancer patients
- emotional support
Compassion Can't Wait
Financial aid for single parents of pediatric patients receiving treatments at specific hospitals
Children's Organ Transplant Association (COTA)
Fundraising help for a child who needs a transplant.
FreeDentalCare
Comprehensive lists of free and sliding scale dental resources
Good Days
Help with drug co-payments, travel and lodging for patients with specific diseases.
Healthcare Hospitality Network
Referrals to free or low cost lodging near medical facilities.
HelpHOPELive
Fundraising help for patients with a catastrophic illness.
Joe's House
Directory of lodging near medical centers that provide discount rates to cancer patients.
Leukemia and Lymphoma Society
- Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder.
- Financial Assistance
- Brochure for children about transplant
- How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.
Lymphoma Research Foundation
- Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma
- Financial assistance for patients undergoing treatment
National Foundation for Credit Counseling
Free personal counseling to eliminate late fees, consolidate bills into smaller monthly payments, stop collection calls, pay off debt faster, lower interest rates, improve monthly spending habits.
National Foundation for Transplants
Fundraising assistance for transplant patients.
National Institutes of Health Center for Cancer Research
Free stem cell transplants for patients who qualify for one of the agency's clinical trials.
National Organization for Rare Disorders (NORD)
- Support and information for those affected by rare diseases.
- Links to support networks and financial aid for various medical conditions.
Patient Access Network Foundation
Help with co-pays for medicines used to treat specific diseases. Patient must have insurance and meet income guidelines.
Patient Advocate Co-Pay Program
Financial assistance to qualified patients to help with prescription drug co-pays.
Pinkyswear Foundation
Provides financial help to families of children through age 21 who have cancer for rent, mortgage, car payments, car repair, groceries, gas, and childcare.
The National Children's Cancer Society
- Information for parents of pediatric cancer patients.
- Financial assistance for travel, meals and lodging while a child is receiving medical care.
- Survivorship information for parents of pediatric cancer patients.
- Scholarships for pediatric cancer survivors.
Expect Miracles Foundation
Expect Miracles Foundation’s SAMFund is a support fund that provides direct financial assistance to young adult post-treatment cancer survivors (ages 21-39) as they regain their financial footing after expensive cancer treatment.
United Healthcare Children's Foundation
Help with medical expenses not covered by insurance for patients up to age 16 who have commercial health insurance.
United Way 211
List of agencies that provide housing, utilities and other financial support.
Sexual Health and Fertility
American Association of Sex Educators, Counselors and Therapists
Offers a directory of certified sex therapists in the U.S.
Nutrition
CancerDietitian
Website by oncology dietitian, Julie Lansford, with information on diets for cancer survivors, food safety and menu planning
Medical Issues after Transplant
Society of Behavioral Sleep Medicine
A directory of cognitive behavioral therapists skilled in managing sleep disorders
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
American Society for Transplantation and Cellular Therapy
- Information for physicians about:
- Appropriate patients to refer for transplant
- Medical preventive and screening practices for survivors after transplant
- Information for families about cord blood banking
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Children's Oncology Group Long-Tern Follow-Up Guidelines
A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.
National Bone Marrow Transplant Link (nbmtLINK)
- Booklet about survivorship after transplant
- Booklet about chronic GVHD
Graft Versus Host Disease
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
BostonSight
Information about PROSE lenses for patients with severe ocular GVHD.
National Bone Marrow Transplant Link (nbmtLINK)
- Booklet about survivorship after transplant
- Booklet about chronic GVHD
National Cancer Institute Graft-versus-Host Disease (GVHD) Study
- Clinical trial researching health outcomes in patients with chronic graft-versus-host disease
- Free, comprehensive medical evaluation by by a team of GVHD experts with recommendations on appropriate care to manage a patient's GVHD symptoms
Help with Insurance
HealthCare.gov
Federal website about current health insurance options.
Patient Advocate Foundation
Assists patients who are having difficulty with health insurance coverage and reimbursement issues.
Triage Cancer
Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.
Your Benefits Advocate
Assistance by experienced attorney to get health insurance claims paid. Fee for service.
Employment Issues
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
Cancer and Careers
Tips on
- Sharing a cancer diagnosis with employers
- How to fix a resume gap
- Your rights to accommodation in the workplace
- Employment search strategies after treatment
Triage Cancer
Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.
Complementary Integrative Medicine
Memorial Sloan Kettering Cancer Center
Information on herbs, botanicals and other products, and their safety for cancer patients.
National Center for Complementary and Integrative Medicine
Research-based information on complementary and integrative medicine.
Young Adult Resources
First Descents
Free local, national and international outdoor adventures for young adult cancer survivors
Bone Marrow & Cancer Foundation
Financial aid for donor costs, medications and equipment, home and child care services, housing and transportation. Provides scholarship grants to survivors for educational opportunities.
Children's Oncology Group Long-Tern Follow-Up Guidelines
A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.
LIVESTRONG Fertility
Information about parenting options after cancer treatment.
Oncofertility Consortium
Counseling on fertility preservation and options for having children after cancer treatment.
Stupid Cancer
Radio show, online communities and links to support programs for young adult cancer survivors.
Expect Miracles Foundation
Expect Miracles Foundation’s SAMFund is a support fund that provides direct financial assistance to young adult post-treatment cancer survivors (ages 21-39) as they regain their financial footing after expensive cancer treatment.
Pediatric Resources
Alex's Lemonade Stand
Travel funds for children treated at specific hospitals.
American Childhood Cancer Organization
Information about pediatric cancers, treatment options, and long-term complications. Resources for parents, children, and teens.
Children's Oncology Group Long-Tern Follow-Up Guidelines
A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.
Cure Search for Children's Cancer
Information about pediatric cancer and treatment.
Leukemia and Lymphoma Society
- Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder.
- Financial Assistance
- Brochure for children about transplant
- How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.
Leukemia Research Foundation
- Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
- Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.
Pinkyswear Foundation
Provides financial help to families of children through age 21 who have cancer for rent, mortgage, car payments, car repair, groceries, gas, and childcare.
The National Children's Cancer Society
- Information for parents of pediatric cancer patients.
- Financial assistance for travel, meals and lodging while a child is receiving medical care.
- Survivorship information for parents of pediatric cancer patients.
- Scholarships for pediatric cancer survivors.
Bone Marrow, Stem Cell and Cord Blood Donors
Blood & Marrow Transplant Information Network (BMTInfoNet)
- Patient handbooks that explain what to expect when going through transplant
- Caring Connections one-on-one peer support program for patients and family members
- Online transplant center directory
- Video Learning Library with information about medical, financial and emotional issues after transplant
- Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
- Resources for family caregivers
- Information on graft-versus-host disease
- Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.
American Society for Transplantation and Cellular Therapy
- Information for physicians about:
- Appropriate patients to refer for transplant
- Medical preventive and screening practices for survivors after transplant
- Information for families about cord blood banking
Be The Match
- Information about preparing for and recovering from a transplant
- Information for unrelated donors
- Online transplant center directory
- Guidelines for long-term follow-up care
- Financial assistance for patients transplanted with cells from an unrelated donor
- Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.
Cord Blood Association
Information about donating cord blood for public use or storing it for private use.
DKMS/We Delete Blood Cancer
Information for people age 18-55 on becoming an unrelated donor.
Kashi Clinical Laboratories
Private testing for people who want to donate marrow or stem cells to a specific individual. Fee for service.
Parent's Guide to Cord Blood Foundation
Information about storing cord blood for private or public use. Data on cord blood registries.
Disease Information and Support
American Brain Tumor Association
Publications
American Sickle Cell Anemia Association
Print material about sickle cell disease and links to support groups throughout the U.S.
Amyloidosis Foundation
Information about amyloidosis and treatment options.
Amyloidosis Support Groups
Information about amyloidosis and links to support groups.
Aplastic Anemia & MDS International Foundation Inc.
Information and peer support for patients with aplastic anemia, myelodysplasia, and PNH.
Diamond Blackfan Anemia Foundation, Inc.
Information about Diamond Blackfan Anemia and treatment options.
Fanconi Anemia Research Fund
Information and links to support services for patients with Fanconi Anemia.
Immune Deficiency Foundation
Information on immune deficiency diseases, finding a specialist, clinical trials, and peer support.
International Myeloma Foundation
Publications, conferences and links to support groups.
International Waldenstrom's Macroglobulinemia Foundation
Information about Waldenstrom’s Macroglobulinemia, treatment options, and support groups.
Leukemia and Lymphoma Society
- Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder.
- Financial Assistance
- Brochure for children about transplant
- How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.
Leukemia Research Foundation
- Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
- Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.
Lymphoma Research Foundation
- Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma
- Financial assistance for patients undergoing treatment
MPN Advocacy & Education International
Information about:
- Myelofibrosis
- Polycythemia vera
- Essential thrombocythemia
and links to support groups.
MPN Education Foundation
- Information about primary myelofibrosis, polycythemia vera, essential thrombocythemia, and chronic myelogenous leukemia (CML)
- Online support group and links to in-person support groups
Multiple Myeloma Research Foundation
Information about multiple myeloma and links to support groups.
National Organization for Rare Disorders (NORD)
- Support and information for those affected by rare diseases.
- Links to support networks and financial aid for various medical conditions.
The Myelodysplastic Syndromes Foundation
Information about myelodysplastic syndromes.