Resource Directory

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information for physicians about:
  • Appropriate patients to refer for transplant
  • Medical preventive and screening practices for survivors after transplant
• Information for families about cord blood banking

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

• Registry of data about blood stem cell transplant practices and outcomes collected from transplant centers world wide.
• Slides about current transplant trends worldwide
• Summaries of select studies conducted by CIBMTR research teams

• Historical data on:
  • Transplants performed at specific U. S, transplant centers
  • Transplants performed in the U.S. for specific diseases 
  • Survival data after transplant for specific diseases

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

• Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder. 
• Financial Assistance
• Brochure for children about transplant
• How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.

• Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma 
• Financial assistance for patients undergoing treatment

Free personalized search assistance for clinical trials.

• Help you and your family learn about and access clinical trials.
• One-on-one telephone support from a clinical trial nurse to help navigate and search for clinical trials.
• Easy-to-use, web-based search tool to find relevant clinical trials
• Easy-to-understand educational resources for patients and families to learn about cancer treatment options and clinical trials.
• Financial assistance for travel expenses related to clinical trials

Information about clinical trials to treat a variety of diseases at medical facilities world-wide.  

Free stem cell transplants for patients who qualify for one of the agency's clinical trials.

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

Information about caring for cancer patients and links to in-person support groups.

Online and mobile app to organize medications, appointments, important contacts and other medical information. 

Website where patients can create a personalized webpage to communicate with friends and family, and organize support during treatment. 

Organize volunteers by creating a personalized calendar and outlining your specific needs. 

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

• National hotline, staffed by child life specialists,  for parents who need help explaining a parent’s illness and treatment to their children.
• Free in-person individual or group sessions, led by child life experts, for children and teens who have a parent with a serious illness in the Austin, San Antonio and Houston, Texas areas.
• Teen mobile app (Sup!) with activities, information, an inspirational wall, moderated discussion forums and direct messaging to a child life specialist

• Financial aid for cancer patients
• emotional support

• Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
• Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.

Online support community for patients with amyloidosis, leukemia, lymphoma, multiple myeloma, POEMS syndrome and stem cell transplant patients.

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Helps those with chronic illnesses or conditions subsidize cost of health insurance premiums.
• Financial assistance available to patients with specific diseases. Covered diseases change periodically.

Free air transportation for patients in financial need who must travel to receive medical treatment.

Travel funds for children treated at specific hospitals.

• Road to Recovery program provides free rides for cancer patients to and from treatment.
• The Hope Lodges offers free lodging for cancer patients undergoing treatment away from home. 
• Extended Stay America provides discounted lodging program for cancer patients.  

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

Financial aid for donor costs, medications and equipment, home and child care services, housing and transportation. Provides scholarship grants to survivors for educational opportunities.

• Financial aid for cancer patients
• emotional support

Financial aid for single parents of pediatric patients receiving treatments at specific hospitals

Fundraising help for a child who needs a transplant.

Comprehensive lists of free and sliding scale dental resources

Help with drug co-payments, travel and lodging for patients with specific diseases.

Referrals to free or low cost lodging near medical facilities.

Fundraising help for patients with a catastrophic illness.

Directory of lodging near medical centers that provide discount rates to cancer patients.

• Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder. 
• Financial Assistance
• Brochure for children about transplant
• How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.

• Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma 
• Financial assistance for patients undergoing treatment

Free personal counseling to eliminate late fees, consolidate bills into smaller monthly payments, stop collection calls, pay off debt faster, lower interest rates, improve monthly spending habits.

Fundraising assistance for transplant patients.

Free stem cell transplants for patients who qualify for one of the agency's clinical trials.

• Support and information for those affected by rare diseases.  
• Links to support networks and financial aid for various medical conditions.

Help with co-pays for medicines used to treat specific diseases. Patient must have insurance and meet income guidelines.

Financial assistance to qualified patients to help with prescription drug co-pays.

Provides financial help to families of children through age 21 who have cancer for rent, mortgage, car payments, car repair, groceries, gas, and childcare.

• Information for parents of pediatric cancer patients.  
• Financial assistance for travel, meals and lodging while a child is receiving medical care.  
• Survivorship information for parents of pediatric cancer patients.
• Scholarships for pediatric cancer survivors.

Expect Miracles Foundation’s SAMFund is a support fund that provides direct financial assistance to young adult post-treatment cancer survivors (ages 21-39) as they regain their financial footing after expensive cancer treatment. 

Help with medical expenses not covered by insurance for patients up to age 16 who have commercial health insurance.

List of agencies that provide housing, utilities and other financial support.

Offers a directory of certified sex therapists in the U.S.

Website by oncology dietitian, Julie Lansford, with information on diets for cancer survivors, food safety and menu planning

A directory of cognitive behavioral therapists skilled in managing sleep disorders

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information for physicians about:
  • Appropriate patients to refer for transplant
  • Medical preventive and screening practices for survivors after transplant
• Information for families about cord blood banking

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.

• Booklet about survivorship after transplant
• Booklet about chronic GVHD

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

Information about PROSE lenses for patients with severe ocular GVHD.

• Booklet about survivorship after transplant
• Booklet about chronic GVHD

• Clinical trial researching health outcomes in patients with chronic graft-versus-host disease 
• Free, comprehensive medical evaluation by by a team of GVHD experts with recommendations on appropriate care to manage a patient's GVHD symptoms

Federal website about current health insurance options.

Assists patients who are having difficulty with health insurance coverage and reimbursement issues.

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.

Assistance by experienced attorney to get health insurance claims paid.  Fee for service.

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

Tips on

• Sharing a cancer diagnosis with employers
• How to fix a resume gap
• Your rights to accommodation in the workplace
• Employment search strategies after treatment

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.

Information on herbs, botanicals and other products, and their safety for cancer patients.

Research-based information on complementary and integrative medicine.

Free local, national and international outdoor adventures for young adult cancer survivors

Financial aid for donor costs, medications and equipment, home and child care services, housing and transportation. Provides scholarship grants to survivors for educational opportunities.

A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.

Information about parenting options after cancer treatment. 

Counseling on fertility preservation and options for having children after cancer treatment.

Radio show, online communities and links to support programs for young adult cancer survivors.

Expect Miracles Foundation’s SAMFund is a support fund that provides direct financial assistance to young adult post-treatment cancer survivors (ages 21-39) as they regain their financial footing after expensive cancer treatment. 

Travel funds for children treated at specific hospitals.

Information about pediatric cancers, treatment options, and long-term complications. Resources for parents, children, and teens.

A comprehensive guide on the late effects of pediatric cancer treatment, and recommendations for how to manage them.

Information about pediatric cancer and treatment.

• Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder. 
• Financial Assistance
• Brochure for children about transplant
• How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.

• Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
• Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.

Provides financial help to families of children through age 21 who have cancer for rent, mortgage, car payments, car repair, groceries, gas, and childcare.

• Information for parents of pediatric cancer patients.  
• Financial assistance for travel, meals and lodging while a child is receiving medical care.  
• Survivorship information for parents of pediatric cancer patients.
• Scholarships for pediatric cancer survivors.

• Patient handbooks that explain what to expect when going through transplant
• Caring Connections one-on-one peer support program for patients and family members
• Online transplant center directory
• Video Learning Library  with information about medical, financial and emotional issues after transplant
• Annual national Celebrating a Second Chance at Life symposium for transplant survivors and family members.
• Resources for family caregivers
• Information on graft-versus-host disease
• Patient assistance fund provides financial help to patients undergoing a transplant, CAR T-cell therapy, and those who have graft-versus-host disease.

• Information for physicians about:
  • Appropriate patients to refer for transplant
  • Medical preventive and screening practices for survivors after transplant
• Information for families about cord blood banking

• Information about preparing for and recovering from a transplant
• Information for unrelated donors
• Online transplant center directory
• Guidelines for long-term follow-up care 
• Financial assistance for patients transplanted with cells from an unrelated donor
• Companion website, bethematchclinical.org, for physicians referring patients for transplant or managing their care after transplant.

Information about donating cord blood for public use or storing it for private use.

Information for people age 18-55 on becoming an unrelated donor.

Private testing for people who want to donate marrow or stem cells to a specific individual. Fee for service.

Information about storing cord blood for private or public use. Data on cord blood registries.

Publications

Print material about sickle cell disease and links to support groups throughout the U.S.

Information about amyloidosis and treatment options.

Information about amyloidosis and links to support groups.

Information and peer support for patients with aplastic anemia, myelodysplasia, and PNH.

Information about Diamond Blackfan Anemia and treatment options.

Information and links to support services for patients with Fanconi Anemia.

Information on immune deficiency diseases, finding a specialist, clinical trials, and peer support.

Publications, conferences and links to support groups.

Information about Waldenstrom’s Macroglobulinemia, treatment options, and support groups.

• Information on leukemia, lymphoma, hodgkin disease, multiple myeloma, myelodysplastic syndrome (MDS) or a myeloproliferative disorder. 
• Financial Assistance
• Brochure for children about transplant
• How to discuss a cancer diagnosis with a child, Trish Greene Back to School Program to prepare classmates for a child's return, and resources for teens and young adults.

• Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago
• Complimentary educational offerings, information on leukemia treatment, childhood leukemia, and peer support.

• Information and emotional support to persons with Hodgkin disease or non-Hodgkin lymphoma 
• Financial assistance for patients undergoing treatment

Information about:

• Myelofibrosis
• Polycythemia vera
• Essential thrombocythemia

and links to support groups.

• Information about primary myelofibrosis, polycythemia vera, essential thrombocythemia, and chronic myelogenous leukemia (CML)
• Online support group and links to in-person support groups 

Information about multiple myeloma and links to support groups.

• Support and information for those affected by rare diseases.  
• Links to support networks and financial aid for various medical conditions.

Information about myelodysplastic syndromes.