Resource Directory

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

Financial Assistance
Transplant Basics
Transplant Center Directory
Bone Marrow, Stem Cell and Cord Blood Donors
CAR T-cell therapy
CAR T-cell Center Directory
Graft-versus-Host Disease (GVHD)
Directory of GVHD Providers
Caring Connections Peer Support Program
Directory of Mental Health Providers
Insurance
Sexual Health & Fertility
Sleep
Support Groups
Video Learning Library
Patient Stories
Pediatric Transplants
Nutrition

Coordinates transport of patients with medical needs using volunteer pilots in the continental United States as well as Alaska and Hawaii.

Funding for transportation and lodging is available for eligible families who are financially burdened by traveling away from their home hospital for care that is only available elsewhere.

Directory of certified sex therapists, counselors and educators who can support those with sexual difficulties after treatment.

Information about adult and pediatric cancer and health insurance. Road to Recovery program provides free rides to cancer treatment. 

Financial Assistance
Insurance & Employment
Pediatric Resources

Information about childhood cancers.

Information about sickle cell disease and support groups.

Information about amyloidosis. 

Information and support for patients with amyloidosis.

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases, treatment options and support groups.

Provides PROSE custom-made lenses for people with severe ocular GVHD.

Information about employment rights during and after cancer treatment.

Cancer support helpline, in-person support groups throughout the U.S.

Online support groups and financial assistance for qualified individuals with cancer. Counseling for people living in New York or New Jersey.

Information on diets for cancer survivors, food safety and menu planning.

Online and mobile app to organize medications, appointments, important contacts and other medical information. 

Create a free web page to communicate with family and friends about the patient's progress and receive messages of support.

Primarily a site for transplant researchers, the site also offers publicly available slide sets on trends in transplantation and survival data.

Reliable medical information about childhood cancers, treatment options, short and long-term side effects, and long-term follow-up survivorship guidelines.

Survivorship Guidelines

Fundraising assistance for families incurring transplant-related expenses for a child or young adult.

Information about clinical trials to treat a variety of diseases at medical facilities worldwide.  

Financial assistance for single parents of children undergoing transplant and other major medical procedures.

Information about donating cord blood for public use or storing it for private use.

Research consortium conducting clinical trials to improve outcomes after childhood cancer.

Recruitment agency for bone marrow and stem cell donors.

Nonprofit agency that helps qualified patients access discounts on hospital bills.

Online magazine featuring stories by young adult cancer survivors and caregivers. Calendar of events of interest to young adult cancer survivors.

Provides direct financial assistance to young adult post-treatment cancer survivors (ages 21-39) as they regain their financial footing after expensive cancer treatment. EMF’s SAMFund Grants Program covers a wide range of post-treatment financial needs related to the cancer experience. EMF also provides a list of resources for patients, survivors, and their families.

Information about Fanconi anemia and treatment options. Support groups, family and adult patient retreats and caregiver resources.

Free outdoor adventure programs to help you adult cancer survivors, aged 18-45,  climb, paddle, and surf beyond their diagnosis, reclaim their lives, and connect with others. 

Information about how to find free or low-cost dental care in the U.S.

Centralized listing of programs for patients living with graft-versus-host disease (GVHD) provided by BMT InfoNet, NMDP, nbmtLINK, Leukemia and Lymphoma Society, American Society for Transplant and Cellular Therapy and The Meredith Cowden Foundation.

Online listing of free or low-cost lodging for patients and their caregivers while they are receiving medical treatment away from their home communities.

Information about available health insurance programs offered via the Affordable Care Act.

Financial assistance for health insurance premiums, medication co-payments, deductibles and out-of-pocket expenses. Also includes disease specific funds. 

Help with community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses.

Information about primary immune deficiency disease, treatment options and a clinician finder.

Information about multiple myeloma, treatment options, and support groups.

Video about CAR T-cell therapy for patients with myeloma

Information about Waldenstrom’s Macroglobulinemia, treatment options and support groups.

Nonprofit organization that helps cancer patients and their families find a place to stay when traveling away from home for medical treatment.

Information about leukemia, lymphoma, multiple myeloma, and other blood disorders. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with a nutritionist.

Information about leukemia and treatment options. One-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

Information about preserving fertility before treatment, fertility clinics, and financial aid for sperm, embryo and egg freezing services.

An online tool to coordinate meals and help for friends & family.

Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

Online program to schedule volunteers to provide meals for someone with a serious illness.

Information about herbs, supplements and botanicals during and after cancer treatment.

Information about multiple myeloma and treatment options. Peer support, support groups, and patient navigation services for patients and caregivers.  Information about CAR T-cell therapy for patients with myeloma.

Webinars, publications, podcasts, and peer support for stem cell transplant and GVHD patients and caregivers.

Clinical trial researching health outcomes in patients with chronic graft-versus-host disease. Free, comprehensive medical evaluation by a team of GVHD experts with recommendations on appropriate care to manage a patient's GVHD symptoms

Fact sheets about specific herbs or botanicals with details, how they may help, and potential side effects.

Treatment guidelines for various types of cancer.

Network of credit counseling agencies that help people facing bankruptcy or overwhelming debt.

Fundraising and grant programs for transplant-related costs not covered by public or private insurance.

Provides stem cell transplants and CAR T-cell therapy free of charge through research clinical trials for qualified patients

Fact sheets about rare diseases. Financial assistance for medication, co-pays, medical testing, and travel for clinical trials, as well as grants for qualified caregivers to provide respite from caregiving duties.

Recruits unrelated donors for patients needing a bone marrow or stem cell transplant. Provides information and support to transplant patients, including:

Disease Information
Transplant Center Directory 
Financial Assistance 
Telephone support groups
Donating Bone Marrow, Stem Cell, and Cord Blood 
Jason Carter Clinical Trials Search and Support Program
Pediatric Resources

Information about fertility preservation before cancer treatment for both children and adults.

Information about cord blood banking

Financial assistance to help people with serious illnesses afford their out-of-pocket treatment costs.

Financial assistance to qualified patients to help with prescription drug co-pays.

Peer-to-peer support and resources for children and teens impacted by their parent's cancer.

Financial assistance for families with a child undergoing treatment for cancer.

Online support communities for patients with a vareity of medical disorders.

Directory of sleep medicine therapists trained in cognitive behavioral therapy for sleep, an effective remedy for insomnia and other sleep disorders.

Resources for adolescents and young adults (AYAs) during and after treatment.

Information about myelodysplastic syndromes (MDS).

Emotional, financial, and educational support for children with cancer and their families. Financial support during treatment and scholarships after treatment.

Extensive information about insurance and employment for cancer patients

Report on number of stem cell transplants by year, donor type, stem cell source, and disease.

Resources for young adult cancer survivors in the Washington DC area

Help with medical expenses not covered by insurance for patients up to age 16 who have commercial health insurance.

Wonders & Worries provides free, professional support for children aged 2-18 who have a parent with a serious or chronic illness or injury. Consultations, classes, and support groups are also available for parents.