Resource Directory

BMT InfoNet has created a directory of oganizations that provide helpful information and support for transplant and CAR T-cell patients and their loved ones.  

To order a print version of this directory click here.

About Transplant

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Center for International Blood and Marrow Transplant Research (CIBMTR)

(414) 805-0700

Primarily a site for transplant researchers, the site also offers publicly available slide sets on trends in transplantation and survival data.

About Transplant

National Bone Marrow Transplant Link (nbmtLINK)

(800) 546-5268

Books and podcasts about stem cell transplant and graft-versus-host disease.

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

U.S. Health Resources & Services Administration (HRSA)

Report on number of stem cell transplants by year, donor type, stem cell source and disease.

About CAR T Therapy

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

Lymphoma Research Foundation

(800) 500-9976

 Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

CAR T-cell Therapy
Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

Caregivers Resources

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

American Brain Tumor Association

(773) 577-8750

Information about brain tumors, treatment options and support for caregivers.

Caregiver Resources
Disease Information and Support

American Cancer Society

(800) 227-2345

Information about adult and pediatric cancer, health insurance and caregiving. Road to Recovery program provides free rides to cancer treatment. Resources for Caregivers

Caregiver Resources
Financial Assistance

Insurance & Employment
Pediatric Resources

Aplastic Anemia & MDS International Foundation Inc.

(800) 747-2820

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases and treatment options.

Caregiver Resources
Peer Support/Support Groups and Counseling

Cancer Support Community

(888) 793-9355

Cancer support helpline, in-person support groups locations throughout the U.S., and information about clinical trials and caregiving.

Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling

CareZone.com

Online and mobile app to organize medications, appointments, important contacts and other medical information. 

CaringBridge

(651) 789-2300

Create a free web page to communicate with family and friends about the patient's progress and receive messages of support.

Fanconi Anemia Research Fund

(541) 687-4658

Information about Fanconi anemia and treatment options. Support groups, family and adult patient retreats and caregiver resources.

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

Lotsa Helping Hands

A central online place to coordinate meals and help for friends & family.

Meal Train

Online program to schedule volunteers to provide meals for someone with a serious illness.

National Bone Marrow Transplant Link (nbmtLINK)

(800) 546-5268

Books and podcasts about stem cell transplant and graft-versus-host disease.

Bone Marrow, Stem Cell and Cord Blood Donors

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Aplastic Anemia & MDS International Foundation Inc.

(800) 747-2820

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases and treatment options.

Caregiver Resources
Peer Support/Support Groups and Counseling

DKMS/We Delete Blood Cancer

(866) 340-3567

Helps families organize bone marrow/stem cell donor recruitment drives. Offers free tissues typing for siblings, children and parents of a patient who needs a transplant.

Kashi Clinical Laboratories

(877) 879-1815

Information about HLA testing for potential bone marrow/stem cell donors who are family members of the patient.

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

Parent's Guide to Cord Blood Foundation

Information about cord blood banking

Peer Support, Support Groups and Counseling

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

American Childhood Cancer Organization

Resources for children undergoing cancer treatment, their parents and siblings, including books about childhood cancer and 24-hour peer support.

Peer Support/Support Groups & Counseling

American Sickle Cell Anemia Association

(216) 229-8600

Information about sickle cell disease.

Peer Support/Supoort Groups & Counseling

Amyloidosis Foundation

(248) 922-9610

Information about amyloidosis

Peer Support/Support Groups and Counseling:

Amyloidosis Support Groups

(866) 404-7539

Information and support for patients with amyloidosis.

Aplastic Anemia & MDS International Foundation Inc.

(800) 747-2820

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases and treatment options.

Caregiver Resources
Peer Support/Support Groups and Counseling

Bone Marrow & Cancer Foundation

(800) 365-1336

Financial assistance for health insurance premiums, medication co-payments, travel, and other essential medical expenses to individuals of all ages with qualifying household income and diagnosed chronic medical conditions.

CancerCare, Inc.

(800) 813-4673

Online support groups and financial assistance for qualified individuals with cancer. Counseling for people living in New York or New Jersey.

Peer Support/Support Groups and Counseling
Financial Assistance

Children's Organ Transplant Association (COTA)

(800) 366-2682

Fundraising assistance for families incurring transplant-related expenses for a child or young adult.

Fanconi Anemia Research Fund

(541) 687-4658

Information about Fanconi anemia and treatment options. Support groups, family and adult patient retreats and caregiver resources.

International Myeloma Foundation

(800) 452-2873

Inforamtion about multiple myeloma and treatment options. Support groups.

International Waldenstrom's Macroglobulinemia Foundation

(941) 927-4963

Information about Waldenstrom’s Macroglobulinemia Foundation and  treatment options.

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

Lymphoma Research Foundation

(800) 500-9976

 Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

CAR T-cell Therapy
Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance

MPN Education Foundation

(517) 899-6889

Information about chronic myeloid leukemia, myelofibrosis, essential thrombocythemia and polycythemia vera. Online and in-person support groups.

Peer Support/Support Groups and Counseling

Pickles

Peer-to-peer support and resources for children and teens impacted by their parent's cancer.

Smart Patients

Online support community for patients with amyloidosis, leukemia, lymphoma, multiple myeloma, POEMS syndrome and stem cell transplant patients.

The National Children's Cancer Society

(800) 532-6459

Provides emotional, financial and educational support to children with cancer, their families and survivors. Financial support includes support during treatment and scholarships after treatment.

Wonders and Worries

(844) 939-6633

Provides free, professional support for children and teenagers through a parent’s serious illness or injury.

Financial Assistance

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Air Charity Network

(877) 621-7177

Coordinates transport of patients with medical needs using volunteer pilots in the continental United States as well as Alaska and Hawaii.

Contact Page: https://aircharitynetwork.org/contact-us/

Alex's Lemonade Stand

(866) 333-1213

Childhood cancer guides, clinical trials navigation, resources for child's school classmates and support for siblings.

Financial Assistance

American Cancer Society

(800) 227-2345

Information about adult and pediatric cancer, health insurance and caregiving. Road to Recovery program provides free rides to cancer treatment. Resources for Caregivers

Caregiver Resources
Financial Assistance

Insurance & Employment
Pediatric Resources

Bone Marrow & Cancer Foundation

(800) 365-1336

Financial assistance for health insurance premiums, medication co-payments, travel, and other essential medical expenses to individuals of all ages with qualifying household income and diagnosed chronic medical conditions.

CancerCare, Inc.

(800) 813-4673

Online support groups and financial assistance for qualified individuals with cancer. Counseling for people living in New York or New Jersey.

Peer Support/Support Groups and Counseling
Financial Assistance

Compassion Can't Wait

(310) 276-7111

Financial assistance for single parents of children undergoing transplant and other major medical procedures.

Children's Organ Transplant Association (COTA)

(800) 366-2682

Fundraising assistance for families incurring transplant-related expenses for a child or young adult.

Dollar For

Nonprofit agency that helps qualified patients access discounts on hospital bills.

Expect Miracles Foundation

(617) 938-3484

Financial assistance for living expenses for cancer survivors age 21-39 who are one year post-transplant with stable disease.  Grants for cancer survivors age 21-39 for fertility preservation, assisted reproduction, gestation carrier or surrogacy fees, fertility testing and adoption.

Free Dental

Information about free and low income dental clinics in the United States, how to qualify for free dental care, tips for finding free or low income dental care, and a list of local free and low income dental care resources from government to non-profit organizations.

FreeDentalCare

Comprehensive lists of free and sliding scale dental resources

Healthcare Hospitality Network

(800) 318-8861

Online listing of free or low-cost lodging for patients and their caregivers while they are receiving medical treatment away from their home communities.

Healthwell Foundation

(800) 675-8416

Financial assistance for health insurance premiums, medication co-payments, deductibles and out-of-pocket expenses. Also includes disease specific funds. 

HelpHOPELive

(800) 642-8399

Help with community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses.

Joe's House

(877) 563-7468

Nonprofit organization that helps cancer patients and their families find a place to stay when traveling away from home for medical treatment.

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

Leukemia Research Foundation

(847) 424-0600

Information about leukemia and treatment options. One-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

Lymphoma Research Foundation

(800) 500-9976

 Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

CAR T-cell Therapy
Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance

National Foundation for Credit Counseling

(800) 388-2227

Network of credit counseling agencies that help people facing bankruptcy or overwhelming debt.

National Institutes of Health Center for Cancer Research

(240) 760-6400

Provides stem cell transplants and CAR T-cell therapy free of charge through research clinical trials for qualified patients

National Organization for Rare Disorders (NORD)

(202) 588-5700

Fact sheets about rare diseases and financial assistance for medication, co-pays, medical testing and travel for clinical trials, as well as grant for qualified caregivers to provide respite from caregiving duties.

Financial Assistance

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

Patient Access Network Foundation

Financial assistance to help people with serious illnesses afford their out-of-pocket treatment costs.

Patient Advocate Co-Pay Program

(866) 512-3861

Financial assistance to qualified patients to help with prescription drug co-pays.

Pinkyswear Foundation

(952) 974-9600

Financial assistance for families with a child undergoing treatment for cancer.

The National Children's Cancer Society

(800) 532-6459

Provides emotional, financial and educational support to children with cancer, their families and survivors. Financial support includes support during treatment and scholarships after treatment.

Ulman Foundation

(888) 393-3863

Resources for young adult cancer survivors in the Washington DC area

United Healthcare Children's Foundation

(855) 698-4223

Help with medical expenses not covered by insurance for patients up to age 16 who have commercial health insurance.

United Way 211

List of agencies that provide housing, utilities and other financial support.

Clinical Trials

Aplastic Anemia & MDS International Foundation Inc.

(800) 747-2820

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases and treatment options.

Caregiver Resources
Peer Support/Support Groups and Counseling

Bone Marrow & Cancer Foundation

(800) 365-1336

Financial assistance for health insurance premiums, medication co-payments, travel, and other essential medical expenses to individuals of all ages with qualifying household income and diagnosed chronic medical conditions.

Children's Oncology Group

(267) 277-7432

Reliable medical information about childhood cancers, treatment options, short- and long-term side effects and long-term follow--up survivorship guidelines.

Clinical Trials
Medical issues after Transplant

Cure Search for Children's Cancer

(800) 458-6223

Research consortium conducting clinical trials to improve outcomes after childhood cancer.

Clinical Trials

Fanconi Anemia Research Fund

(541) 687-4658

Information about Fanconi anemia and treatment options. Support groups, family and adult patient retreats and caregiver resources.

Lymphoma Research Foundation

(800) 500-9976

 Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

CAR T-cell Therapy
Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance

Multiple Myeloma Research Foundation

(888) 841-6673

Information about multiple myeloma and treatment options. Peer support, support groups, and patient navigation services for patients and caregivers

National Institutes of Health

Information about clinical trials to treat a variety of diseases at medical facilities world-wide.  

National Institutes of Health Center for Cancer Research

(240) 760-6400

Provides stem cell transplants and CAR T-cell therapy free of charge through research clinical trials for qualified patients

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

NMDP Jason Carter Clinical Trials Program

Online information and telephone support to help patients identify clinical trials open to patients with a blood cancer and other blood disorder.

Sexual Health and Fertility

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

American Association of Sex Educators, Counselors and Therapists

(202) 449-1099

Directory of certified sex therapists, counselors and educators who can support those with sexual difficulties after treatment.

Expect Miracles Foundation

(617) 938-3484

Financial assistance for living expenses for cancer survivors age 21-39 who are one year post-transplant with stable disease.  Grants for cancer survivors age 21-39 for fertility preservation, assisted reproduction, gestation carrier or surrogacy fees, fertility testing and adoption.

LIVESTRONG Fertility

(855) 220-7777

Information about preserving fertility before treatment, fertility clinics, and financial aid for sperm, embryo and egg freezing services.

Oncofertility Consortium

(517) 884-6434

Information about fertility preservation before cancer treatment for both children and adults.

Medical Issues After Transplant

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

CancerDietitian

Information on diets for cancer survivors, food safety and menu planning.

Children's Oncology Group

(267) 277-7432

Reliable medical information about childhood cancers, treatment options, short- and long-term side effects and long-term follow--up survivorship guidelines.

Clinical Trials
Medical issues after Transplant

GVHD Alliance

Centralized listing of programs offered for patients living with graft-versus-host disease (GVHD) by BMT InfoNet, NMDP, nbmtLINK, Leukemia and Lymphoma Society, American Society for Transplant and Cellular Therapy and The Meredith Cowden Foundation.

National Bone Marrow Transplant Link (nbmtLINK)

(800) 546-5268

Books and podcasts about stem cell transplant and graft-versus-host disease.

Society of Behavioral Sleep Medicine

(859) 312-8880

Directory of sleep medicine therapists trained in cognitive behavioral therapy for sleep, an effective remedy for insomnia and other sleep disorders.

Medical Issues after CAR T cell therapy

CancerDietitian

Information on diets for cancer survivors, food safety and menu planning.

Graft Versus Host Disease

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

BostonSight

(781) 726-7337

Provides PROSE custom-made lenses for people with severe ocular GVHD.

GVHD

GVHD Alliance

Centralized listing of programs offered for patients living with graft-versus-host disease (GVHD) by BMT InfoNet, NMDP, nbmtLINK, Leukemia and Lymphoma Society, American Society for Transplant and Cellular Therapy and The Meredith Cowden Foundation.

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

National Bone Marrow Transplant Link (nbmtLINK)

(800) 546-5268

Books and podcasts about stem cell transplant and graft-versus-host disease.

National Cancer Institute Graft-versus-Host Disease (GVHD) Study

(240) 858-3681

Clinical trial researching health outcomes in patients with chronic graft-versus-host disease
Free, comprehensive medical evaluation by by a team of GVHD experts with recommendations on appropriate care to manage a patient's GVHD symptoms

Insurance and Employment

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

American Cancer Society

(800) 227-2345

Information about adult and pediatric cancer, health insurance and caregiving. Road to Recovery program provides free rides to cancer treatment. Resources for Caregivers

Caregiver Resources
Financial Assistance

Insurance & Employment
Pediatric Resources

Cancer and Careers

(646) 929-8032

Information about employment rights during and after cancer treatment.

HealthCare.gov

(800) 318-2596

Information about available health insurance programs offered via the Affordable Care Act.

Triage Cancer

(424) 258-4628

Provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers.

Complementary Integrative Medicine

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Memorial Sloan Kettering Cancer Center

Information about herbs, supplements and botanicals during and after cancer treatment.

Complementary/Integrative Medicine

National Center for Complementary and Integrative Medicine

(888) 644-6226

Fact sheets about specific herbs or botanicals—common names, what the science says, potential side effects and cautions, and resources for more information.

Adolescents and Young Adult Resources

Children's Oncology Group

(267) 277-7432

Reliable medical information about childhood cancers, treatment options, short- and long-term side effects and long-term follow--up survivorship guidelines.

Clinical Trials
Medical issues after Transplant

Children's Organ Transplant Association (COTA)

(800) 366-2682

Fundraising assistance for families incurring transplant-related expenses for a child or young adult.

Elephants and Tea

Online magazine featuring stories by young adult cancer survivors and caregivers. Calendar of events of interest to young adult cancer survivors.

Expect Miracles Foundation

(617) 938-3484

Financial assistance for living expenses for cancer survivors age 21-39 who are one year post-transplant with stable disease.  Grants for cancer survivors age 21-39 for fertility preservation, assisted reproduction, gestation carrier or surrogacy fees, fertility testing and adoption.

First Descents

(303) 945-2490

Free outdoor adventure programs that empower them to climb, paddle, and surf beyond their diagnosis, reclaim their lives, and connect with others doing the same. Our programs are open to any young adult diagnosed with cancer or MS between the age of (15-39), and currently between the age of (18-45)

LIVESTRONG Fertility

(855) 220-7777

Information about preserving fertility before treatment, fertility clinics, and financial aid for sperm, embryo and egg freezing services.

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

Oncofertility Consortium

(517) 884-6434

Information about fertility preservation before cancer treatment for both children and adults.

Stupid Cancer

(212) 619-1040

Resources for adolescents and young adults (AYAs) during and after treatment.

Ulman Foundation

(888) 393-3863

Resources for young adult cancer survivors in the Washington DC area

Pediatric Resources

Blood & Marrow Transplant Information Network (BMTInfoNet)

(888) 597-7674

Online information and books about bone marrow/stem cell transplant, CAR T-cell therapy and graft-versus-host disease. Support groups and one-on-one peer support program. Directories of transplant centers, CAR T-cell centers, GVHD clinics and physicians and mental health providers. Video learning library with presentations about late effects after treatment. Financial assistance.

About Transplant
CAR T-cell Therapy
Peer Suppor/Support Groups and Counseling
Financial Assistance
Sexuality Health and Fertility
Medical Issues after Transplant
GVHD
Insurance and Employment
Pediatric Resources

Alex's Lemonade Stand

(866) 333-1213

Childhood cancer guides, clinical trials navigation, resources for child's school classmates and support for siblings.

Financial Assistance

American Cancer Society

(800) 227-2345

Information about adult and pediatric cancer, health insurance and caregiving. Road to Recovery program provides free rides to cancer treatment. Resources for Caregivers

Caregiver Resources
Financial Assistance

Insurance & Employment
Pediatric Resources

American Childhood Cancer Organization

Resources for children undergoing cancer treatment, their parents and siblings, including books about childhood cancer and 24-hour peer support.

Peer Support/Support Groups & Counseling

Children's Oncology Group

(267) 277-7432

Reliable medical information about childhood cancers, treatment options, short- and long-term side effects and long-term follow--up survivorship guidelines.

Clinical Trials
Medical issues after Transplant

Compassion Can't Wait

(310) 276-7111

Financial assistance for single parents of children undergoing transplant and other major medical procedures.

Children's Oncology Group Long Term Follow Up Guidelines

Recommended screenings and follow-up care long-term for children, teens and young adult survivors of cancer and transplant.

Cure Search for Children's Cancer

(800) 458-6223

Research consortium conducting clinical trials to improve outcomes after childhood cancer.

Clinical Trials

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

NMDP

(888) 999-6743

Recruits and provides unrelated donors for transplant. Information about bone marrow/stem cell transplants including directory of transplant centers with outcomes data. Monthly online support groups and one-on-one counseling, and financial assistance for donor search costs, housing and travel to clinical trials.

About Transplant
CAR T-cell Therapy
Bone Marrow, Stem Cell & Cord Blood Donors
Jason Carter Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance
Adolescents and Young Adult Resources
Pediatric Resources

Oncofertility Consortium

(517) 884-6434

Information about fertility preservation before cancer treatment for both children and adults.

Pinkyswear Foundation

(952) 974-9600

Financial assistance for families with a child undergoing treatment for cancer.

The National Children's Cancer Society

(800) 532-6459

Provides emotional, financial and educational support to children with cancer, their families and survivors. Financial support includes support during treatment and scholarships after treatment.

Disease Information and Support

Alex's Lemonade Stand

(866) 333-1213

Childhood cancer guides, clinical trials navigation, resources for child's school classmates and support for siblings.

Financial Assistance

American Brain Tumor Association

(773) 577-8750

Information about brain tumors, treatment options and support for caregivers.

Caregiver Resources
Disease Information and Support

American Childhood Cancer Organization

Resources for children undergoing cancer treatment, their parents and siblings, including books about childhood cancer and 24-hour peer support.

Peer Support/Support Groups & Counseling

American Sickle Cell Anemia Association

(216) 229-8600

Information about sickle cell disease.

Peer Support/Supoort Groups & Counseling

Amyloidosis Foundation

(248) 922-9610

Information about amyloidosis

Peer Support/Support Groups and Counseling:

Amyloidosis Support Groups

(866) 404-7539

Information and support for patients with amyloidosis.

Aplastic Anemia & MDS International Foundation Inc.

(800) 747-2820

Information about aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases and treatment options.

Caregiver Resources
Peer Support/Support Groups and Counseling

Children's Oncology Group

(267) 277-7432

Reliable medical information about childhood cancers, treatment options, short- and long-term side effects and long-term follow--up survivorship guidelines.

Clinical Trials
Medical issues after Transplant

Fanconi Anemia Research Fund

(541) 687-4658

Information about Fanconi anemia and treatment options. Support groups, family and adult patient retreats and caregiver resources.

Immune Deficiency Foundation

(410) 321-6647

Information about primary immune deficiency disease, treatment options and a clinician finder.

International Myeloma Foundation

(800) 452-2873

Inforamtion about multiple myeloma and treatment options. Support groups.

International Waldenstrom's Macroglobulinemia Foundation

(941) 927-4963

Information about Waldenstrom’s Macroglobulinemia Foundation and  treatment options.

Leukemia and Lymphoma Society

(800) 955-4572

Information about blood disorders and treatment option. Peer support and support groups. Financial assistance. Clinical trials navigation. Free consultation with nutritionist.

CAR-T-Cell Therapy
Clinical Trials
Caregiver Resources
Peer Support/Support Groups and Counseling
Financial Assistance
GVHD
Pediatric Resources

Leukemia Research Foundation

(847) 424-0600

Information about leukemia and treatment options. One-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.

Lymphoma Research Foundation

(800) 500-9976

 Information about lymphoma and treatment options. Peer support and financial assistance during treatment.

CAR T-cell Therapy
Clinical Trials
Peer Support/Support Groups and Counseling
Financial Assistance

MPN Education Foundation

(517) 899-6889

Information about chronic myeloid leukemia, myelofibrosis, essential thrombocythemia and polycythemia vera. Online and in-person support groups.

Peer Support/Support Groups and Counseling

Multiple Myeloma Research Foundation

(888) 841-6673

Information about multiple myeloma and treatment options. Peer support, support groups, and patient navigation services for patients and caregivers

National Organization for Rare Disorders (NORD)

(202) 588-5700

Fact sheets about rare diseases and financial assistance for medication, co-pays, medical testing and travel for clinical trials, as well as grant for qualified caregivers to provide respite from caregiving duties.

Financial Assistance

The Myelodysplastic Syndromes Foundation

(800) 637-0839

Information about myelodysplastic syndromes (MDS).