GVHD is not always forever.
I want those who are suffering with GVHD to have HOPE. I am 5+ years post transplant and during year one I had skin GVHD a couple of times. Although more mild than organ or eye GVHD or some others, it was really painful and I often felt like my back was on fire. One time I had it all over my face, no looking in the mirror for me. It made daily activities a real chore. I was given topical meds that helped but at the time all I could think about was “will this continue forever?” Keep that HOPE alive.
