My mom has to travel every week to Boston, MA from Albany, NY (approx. 3 hours) to get Extracorporal photopheresis ("ECP"), which is a proven treatment for chronic GVHD and has been a tremendous help with my mom's symptoms. However, driving back and forth to and from Boston for twice weekly treatments has been a tremendous financial and emotional hardship. My mom is hoping to raise awareness about ECP and get all the machines and training to Albany Medical Center so ECP is more readily available to patients in the area.
