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Pre-Register

Connect with other Parents of a Child with GVHD.

If your child is age 0-18 years and has been diagnosed with chronic graft-versus-host-disease (GVHD), we invite you to join this monthly support group. Share experiences and support with others who truly understand the challenges of caring for a child who has chronic GVHD.

The GVHD parent support group is for caregivers of a child who is a year or more post-transplant and is currently being treated for chronic GVHD. The group is led by a licensed social worker who has extensive experience working with parents and children lving with GVHD. The group meets online via Zoom.

Parent of a Child with GVHD Support Group
Phone Type
Patient Info & Relationship
Diagnosis Info
Type in diagnosis to see list or select Other and complete the disease description.
If your disease was not listed above enter it here. 
What type of therapy did the patient have?
Transplant Info
Health Issues List After Transplant
Select all Complication after transplant
Did they have GVHD?
Do they currently have GVHD
The Severity of GVHD
Select all organs GVHD is or has affected.
Length of time living with chronic GVHD
CAR T-cell Therapy
Did they have Cytokine Release Syndrome (CRS)
What symptoms of CRS did they experience
Did they have ICANS/Neurological
What symptoms of ICAN/Neurological did they experience
Other Complications after CAR T-Cell
Activity
General Contact Info
Do you speak languages other than English?
Select ALL Languages Spoken

 I agree to keep the names and comments of all participating in the group discussions confidential.
This support group is for Parents of a child who is a year or more post-transplant and is currently being treated for chronic GVHD.  Since you checked, you are not the Parent, please check out our other support groups. If you have any questions, please email Michala at michala@bmtinfonet.org.