Pre-Register

Connect with other caregivers for adult GVHD patients.

If you are a caregiver for an adult who has been diagnosed with chronic graft-versus-host disease (GVHD), we invite you to join an online GVHD caregiver support group.  Share experiences and support with others who truly understand the challenges of caring for a loved one who has chronic GVHD.

The GVHD caregiver support group is for caregivers of patients who are a year or more post-transplant and are currently being treated for chronic GVHD. It is led by a licensed psychologist who has extensive experience working with caregivers of GVHD patients. The group meets online via Zoom.

Caregiver of a GVHD Patient Support Group
Phone Type
Patient Info & Relationship
Diagnosis Info
Type in diagnosis to see list or select Other and complete the disease description.
If your disease was not listed above enter it here. 
What type of therapy did the patient have?
Transplant Info
Health Issues List After Transplant
Select all Complication after transplant
Did they have GVHD?
Do they currently have GVHD
The Severity of GVHD
Select all organs GVHD is or has affected.
Length of time living with chronic GVHD
CAR T-cell Therapy
Did they have Cytokine Release Syndrome (CRS)
What symptoms of CRS did they experience
Did they have ICANS/Neurological
What symptoms of ICAN/Neurological did they experience
Other Complications after CAR T-Cell
Activity
Has GVHD affected relationships
Has GVHD been emotionally challenging
General Contact Info
Do you speak languages other than English?
Select ALL Languages Spoken

 I agree to keep the names and comments of all participating in the group discussions confidential.
This support group is for the Spouse/Partner who is caregiving for an adult GVHD patient.  Since you did not check that you are the Spouse/Partner, please check out our other support groups. 
If you have any questions, please email Michala at michala@bmtinfonet.org.   
Donate
For Medical
Professionals