Looking forward to the time when I no longer fear GVHD because it has not come back!
I got a very severe skin rash just a few days after leaving the hospital following the BMT (Haplo match from sister for AML). They thought it was induced by one of the meds, then GVHD took over. It was weeks with ointments, prednisone, itching, and so much fear. Since then it has only come back one time in a very mild form, following vaccinations for flu/covid. My fear is still there- fear of the smallest cold or bug that will get my blossoming immune system kicking, and cause a flare-up. I'm told it gets better with time- and I'm hoping that is true.
