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Learn about bone marrow/stem cell transplant, CAR T-cell therapy, graft-versus-host disease (GVHD), and how to manage late effects of treatment.

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After a bone marrow transplant, child often have challenges at school with attention, organization multi-tasking and behavior. School interventions are available to help children feel successful in the academic environment and achieve their potential. This is a video of a workshop presented at the 2019 Celebrating a Second Chance at Life Survivorship Symposium Presentation is 42 minutes, followed by 18 minutes of Q&A
Most, but not all, survivors are infertile after a bone marrow, stem cell or cord blood transplant. Men may be able to preserve sperm, and some women may be able to collect and store eggs or embryos prior to transplant. Transplant survivors can build families after transplant through medically assisted reproduction or adoption.
It is important to discuss sexual health issues after transplant with your doctor. Be proactive. Don't wait for your doctor to raise the issue firstChemotherapy, radiation, graft-versus-host disease and changes in self-perception of body image can contribute to sexual difficultiesA variety of therapies are available to address erectile dysfunction and/or loss of interest in sexIt’s important to understand what your partner is thinking and feeling so that you can work together toward better intimacy
A yoga breathing technique The physical aspects of yoga and a chair exercise How to quiet the mind
Employment Rights and Disability Insurance Options
Clinical trials for stem cell and bone marrow transplant patients are an important tool for identifying new and more effective treatments for many diseases. This presentation describes the design and conduct of such trials and what patients need to know to make a truly informed decision about whether to join a trial.
Bone marrow and peripheral blood stem cell transplants are a potential cure for many people with a life-threatening disease. Family members may be tested to determine if they can donate bone marrow or peripheral blood stem cells (PBSCs) to a relative who needs a transplant. This presentation reviews the procedures, risks, benefits and safety of donating bone marrow or PBSCs to a relative.
Dr. Paice discusses: Sources of pain, types of pain transplant survivors experience, techniques used to assess pain and appropriate interventions for various types of pain.
Great strides have been made in bone marrow, stem cell and cord blood transplantation. An increasing number of patients with blood disorders are now able to enjoy a second chance at life, thanks the efforts of doctors and patients who pioneered this life-saving treatment. This video identifies Nancy McClain, who was transplanted in 1963, as the longest living bone marrow transplant survivor. Since then, we have learned that a six-year-old child named Nancy Lowry was successfully transplanted with bone marrow from her identical twin sister three years earlier in 1960. Nancy Lowry, who went on to be a public health and school nurse, is alive and well today.
An overview of what a pediatric bone marrow or umbilical cord blood transplant involves.